We just got back from a very informative optometrist appointment with Hanna. Matt stayed with the rest of the kids outside, while I went in with Hanna. We did it a little bit differently this time, and I picked up the dilating drops from the pharmacy before the appointment, and I administered the drops. I was the bad guy this time, so she could have a great visit with Dr. C; and she did.
Her pupils dilated nicely for him, and she co-operated like an angel.
With Hanna's nystagmus, it's extremely hard for him to get a good look into her eyes. BUT. She's older now, and she does her best to keep still and looks exactly where he tells her to. She did awesome!
At her last appointment he noticed some far-sightedness, but most young children are to an extent.
Hanna's is much more than that extent, and he is really leaning toward prescribing her some glasses! I'm not going to get too excited until we know for sure, but I can't even help to be excited about even the possibility. We were always told corrective lenses wouldn't help her case, so this is great news.
She's starting school this year, and I want her to start out right. If a little cute pair of glasses will help her excel, even a little bit easier than without, I want them. 100%
He also said that her retinas look "pretty good", but he wants to start seeing her every three months, just to keep a close eye on them. He showed us a short video on what it might look like to have a retina detach, and I'm not sure she would even notice until it was too late to do anything about it. She already has "shadows" that move along the back of her eye from the "stalks" in her vitreous, so if part of her retina did detach, it may just look like that shadow that she is already used to.
That part scares me, but he's keeping a close eye, so I'm just hoping that is enough.
Dr. C was totally thrilled that Hanna could make out some of the pictures on the display to test her acuity, but he still couldn't use the projector that he uses for the other kids. I said it many times before, but she shouldn't be able to see at all. He couldn't say enough how "HUGE" it was that she could see pictures in front of her. That goes without saying, we didn't get an acuity today, which is totally okay by me.
He also said that he met another young man with FEVR. (Hanna's eye symptoms best match this disorder). He is about 18 years old, and in law school. How neat is that?
We go back on September 9th to see if she will be getting glasses. He's going to administer some cyclopentolate this time, which is just a stronger drop to keep her eyes dilated and stop them from focusing for a longer period, so he can test her long focus better.
We'll keep our fingers crossed and hope and pray that she'll have a shiny new pair of specs by the end of September!