Sunday, September 29, 2013

glasses update

Hanna's had her glasses for over a week now.
She gets very excited when someone asks about them, and can't wait to show them how they look in her. But as soon as she can, she takes them off and hands them back to me. I'm sure they're doing what they're supposed to do, but for one - they are way too big. They fall off her face, and definitely need to be adjusted. 
That reason alone may be enough to turn her off of them. 
The hard thing about Hanna is the unanswered questions. Her vision is a mystery to us, and that's really hard. Since she has multiple retina folds, what I picture her vision as, is a very small, or maybe a couple very small areas that she can see through. (Imagine looking through a pinhole.)
I'm not sure that with that amount of limited vision, glasses would be able to make enough of a difference - for a four year old to appreciate.
I do definitely think she should wear them on a regular basis when necessary. They are a good start, and understandably, it's going to take her a little while to get used to them, but I'm looking forward to seeing her optometrist again to discuss re-sizing.
She's been wearing them for school when she does her book work, but as soon as we start the hand-on stuff, she wants them off because they just get in the way.
I know she feels pretty special to have a snazzy pair of glasses "to help her see better" as she says, so hopefully that will be enough to keep her excited about them and willing to use them daily.
I'm just hoping that she gets more and more comfortable with them and they will eventually be her automatic "go-to" when close details are necessary. 

Saturday, September 21, 2013


Hailey: *crying in toy room* 
"Oh no! Me pooped!"

Me: "What?! What happened?!" 
*walks into room*

Hailey: "ME POOPED!" *still crying* "Ta-Da!" 
*while pointing to the poop on the floor* 

*thinking to myself while trying to keep a straight face while giving her heck:*
"HA HA HA! Ta-Da??"
This child. 

Friday, September 20, 2013

they came!

I didn't update after the post about the possibility for glasses for Hanna, but we got great news and she now has them! 
She waited a very long week for them to get made, and Matt was the hero this morning when he got home from work with them. After noticing that Dr. C even made sure they had some blue in them somewhere, she was even more excited. She immediately wanted to try them on, and see how she could see with them. She jumped up to the TV to test them out. 
They were the only pair we could find that fit her tiny face, and after they shortened them, they are still big! 
She kept them on the entire time in the house, but as soon as she went outside to play, she took them off and said "Here, I don't need them."
So that's good. She knows when they will help, and when they will be a hindrance. She has gotten around just fine all this time without them, and has worked hard to figure out exactly what works for her. We only want them to do her good, and if they get in the way of running, jumping, and dancing, that's no good...and they can sit on the shelf and wait until she's ready to put them back on.
This sweet girl is going to have a hard time learning numbers and early reading, with her very limited vision, so if the tiny little lenses will assist, with even just her confidence, I will be so grateful.
I'm anxious to see how she does on Monday during school.
Gracie was so cute today too when Hanna tried them on. She came over to me and quietly said, "Mama, I think Hanna looks just adorable in those!"
What a great big sister she is. I can't ask for anything more than what she is for Hanna.
At the end of the day, I like her little glasses. They suit her.
I'm glad they're only part-time right now, but so thankful because I know they will help her. 
Just a bonus that they look cute too!

Monday, September 16, 2013

sisters (and a brother)

I am lucky enough to have 2 sisters of my own, so I know how special the bond shared is.
I'm so glad these girls of mine have eachother.
They will always be best friends, and they will always look out for one another.
These days I love just watching them.
They are all so different, but bring out the best in each other every day.
They are also all sisters to this little guy.
 How lucky is he?!
 Don't be worried, sweet boy. 
These girls are gonna take care of you. 
 Then one day, you will take care of them. Just like my little brothers now do for me.
 You are one lucky little boy to have 3 big sisters all to yourself!

And I am one lucky mama to have 4 little stinkers all to myself!
(Well, aside from sharing a little with daddy)

Wednesday, September 11, 2013

we have some new....

My dad helped in naming them Tom and Jerry, and they will be our outdoor buddies! 
Gracie decided that Tom is the black one, and the other is little Jerry. 

Tuesday, September 3, 2013

Echolocation for the Visually Impaired?

Obviously, hearing those words were pretty exciting for me. 
Tim Johnson, the author of Beginner's Guide to Echolocation for the Blind and Visually Impaired contacted me a little while back, after learning about Hanna's limited vision. He kindly sent me his book, and I was so excited to read it. Before receiving my book, I went onto his website to try to get an idea of what to expect. Check out the site, the short video presented there is pretty neat and you will quickly learn what echolocation is and some ideas of what you'll find in his inspiring book. 

It took me longer to read the book than I wanted it to, because I had to limit it to my finally-alone-in-bed-with-no-one-hanging-on-me-time, but it was worth staying up late and reading. It really got me thinking, but not too hard, which is nice! Tim has a simple, and relaxed way of explaining the mechanics of sound, and some basic techniques to get started in active echolocation with clear explanations and even illustrations where they were necessary.
It gives simple examples and exercises like sensitizing your hearing to learn how to "see with your ears".

What I didn't know what that echolocation is actually starting to be used in the orientation and mobility field, which is just incredible to me. Everyone who can hear, is capable of echo-locating, which opens doors for so many people who are visually impaired who maybe aren't as independent as they want to be. 

As with everything, echolocation may not be right for everyone, but should be known as a navigational option for people. For those people who will take the effort to learn it, this book is the place to start. It is most definitely a Beginner's Guide to Echolocation, and I'm happy to be introduced to the concept.