Tuesday, January 28, 2014

my little man

Well, my baby, is very quickly getting big.
 I wanted him to take longer with everything. He's the baby, and I really wanted him to just take his time.
I know. I know. It's inevitable.
He's going to grow up...
One thing for sure though, he definitely is going to be a hoot doing it!
He took 4 steps yesterday.
 The trick seems to be giving him a cup to hold. Not sure why...but without it, his feet stayed glued in one spot. Maybe it gives him something to focus on.

 Someone roll that poor kid's pants!
He's mastered falling, and catching his balance. He took 5 more steps today. 
 Big, big boy!
He'll be 9 months old on the 2nd. 
He's got 3 teeth, and 2 more just beginning to come through. 
He says all the babbling sounds, except "mama". Of course.
It always seems to be the last one!
He eats everything! He had pudding last night and I could see in his eyes, that he was wondering why it took so long to be introduced to the dessert. 
He usually only has one good nap a day. He takes after all of his sisters, and doesn't like to miss a beat. 
His all time favourite thing to do is escape into the entrance way and spill Lucy's water, and food. 
 At least he doesn't eat it.
I'm enjoying this kid. 
He's such a joy. Honestly.
I'm cherishing every single second.

Friday, January 24, 2014

just some quotables...

1. Hailey: "I wub apples! Apples are dee-wittits!"

2. *After realizing it's too quiet*
 Me: "Hailey! Where you at?"
Hailey: *Walks out slowly from hallway*
             "I'm wight how!"
Me: "But what were you doing?"
Hailey "I wasn't doin' anyting..."
Me: "I don't like that. You were doing something. What was it?"
Hailey: "I was in yous dow-er"
Me: "In my drawer? In the bathroom? What did you find?"
Hailey: "Powder"

3. Hanna and Hailey: "We're having a POO PARTY!" 
Me: "A pool party? Alright! Have fun!"
Hanna: "No! A POOP party! Ha! Ha! Ha!!"
Me:   "......"

There's been a lovely obsession with "poop" lately. I'm blaming Hailey for that one. She's got an interesting sense of humour. 
During Christmas time we were shopping, and those two trouble makers were sitting in the front of my cart singing:
"Oh Christmas poop, Oh Christmas poop!" and "Oh what fun it is to POOP....." then "Jingle poop, jingle poop..."
Oh the joys...

Sunday, January 19, 2014

have i ever mentioned...

...that I have the best parents. Ever?
I'll get to that in a second.

We've also been getting one of the best winters. Ever. 
A few weeks ago we got about 2 feet of snow dumped on us, but it was too cold to let the kids play outside. We're talking sub-zero fahrenheit temps without the windchill!
They got out a couple times to sled, but not for long. So the waiting for a warm up began. 
By the time a warm up came...so did the rain. 
Soon enough, almost all of the snow was gone, and we had a sloppy mess. 
For a couple days.
Then. It all froze again!
My dad grabbed the opportunity, and took out my brother Danny's 3-wheeler he bought just for playing around.  He wanted to take the kids for the ultimate sled ride.
Of course I didn't get pictures, but Kristyn did! So I stole them. 
Thanks, Kristyn. :)

 The kids had a blast! 
Hanna, Payton, and Hailey were already inside when these photos were taken, but they all had their turns, and they all loved it! 

All the while my mom was inside, making dinner, and a giant pot of hot chocolate for the kids after they were done to warm them all up. 
Don't you agree?
 Best. Parents. Ever.

Friday, January 17, 2014

the dreaded sickkids visit

The last time we visited SickKids was back in 2012, for a Cardiology and Genetics follow-up.
Well, the time came once again to make that visit. 
Matt had just returned back to work from a three week shut down, so we decided he shouldn't take a day off to come for this appointment. My parents took us instead for a day trip out, and I'm so glad they did. The roads were extremely messy on the way there, and it felt so good to have my dad drive.
We (my parents, Ben, Hanna and me) left at 3 am, to make it to her first appointment at 8:00. We made it, barely, but we made it. 
She had her ECHO and ECG at this time. She did so well. She didn't need any sedation, which helped a lot, and kept her happy to follow any directions thrown at her. The ECHO took about 45 minutes to do, and the ECG was quickly done after that.
We met with her doctor a short time later, and he was really happy to see how well she was doing.
Right away he told us how good she was doing, and how she was carrying a conversation with him so well. He asked if he could take her home with him, and her attitude toward him changed pretty darn quick! It was actually really funny. 
When we told him that she's still a puzzle to Genetics, he responded with "Well that just shows how sophisticated the human body is, and how much we don't know or understand". 
I liked that.
He then continued to tell us that her heart is going to be just fine. 
Every hole that she once had is now closed up, except for a couple VSD's that are muscular, so not as serious as membranous VSD's.  
He still wants to see her in two years for another follow-up, but told us not to restrict her activity in any way, and basically treat her like a normal healthy child (which we do). This was great news!
I made that appointment, and then we were off to Genetics. 
My least favourite place.
Hanna was colouring when they came in to greet us, and they instantly told us how great she looked. We continued into a room to give them a proper update. 
They concluded that development wise, she's pretty darn close to being at the same level as her peers. 
Growth wise, she's nowhere near.
Her weight and head circumference are both way off the charts, and her height is at 3rd percentile. 
 They mentioned the possibility of a repeat MRI, for follow-up reports, and more intensive genetic screening that's available now in the research stages for clients at SickKids. 
This test would screen her entire genetic makeup, which would almost definitely find a diagnosis. It would also give us a look into her future, which is extremely scary to me. They would be able to predict which diseases or illnesses (if any) she would be at a greater risk for, and how she became...her. 
I'm not a scientific person. I like to look at things as they are. In Hanna's case, it's a mystery. Hanna is Hanna because that's how she was supposed to be. She's her own unique little miracle that I'm so blessed to be able to love. God made her how she is because that was His plan, and you know what, that's all I need. 
I don't need to know all the answers. 
Not knowing is scary. 
But I think knowing too much, is even scarier. 
I want to keep our foot in the door with Genetics because if God forbid, something does start going wrong, we can call, and they can have her tested and probably find answers within days. Otherwise, we would be going from doctor to doctor, on waiting lists for tests, etc. This is a great benefit of her being a patient here.
Her geneticist did go on to say that at first they were thinking she could have some sort of metabolic disease. I remember the testing for those, and it was the worst time of my life waiting for those results.
Even if it was something like that now, that wasn't found, he said that by five years old, we would be seeing the effects by now because they are all very progressive diseases. Hanna is not doing anything, but growing, developing, and showing them that she's capable of a whole lot more than they ever thought she'd be. She's also the healthiest kid you'll meet, being able to dodge almost every illness that makes it's way through the house. She'll be the only one that doesn't get it. 
I took some copies of the consent forms for the screening to go over them with Matt. We may or may not participate in the test. If we can help find answers for concerned parents down the road, I would love to do that. LOVE to do that. 
But answers for me, honestly aren't important. As long as she keeps showing us that she's healthy, that's good enough for me. 
If that ever changes, we can worry about it then. Right now, I just want to live, enjoy, and carry on. 
She's perfect.

Monday, January 13, 2014

Ayden's visit

We had Ayden for a few nights, during the school week, so the girls had an extra student in their class for a few days.
Apparently he told his teacher "Don't worry, my sister home schools, so I'll still be doing work!" So she sent him with some homework and he worked on it while we did school here. It worked out quite well actually! 
They got to do some sledding when their work was done, and I think he had a good time! 
I know everyone is just over the moon when he comes over. It's a nice treat for everyone while he's here. 
The first day Ben was a little cranky with Ayden, which really surprised me. He's such a happy, good little boy, so when he started making strange with Ayden, it really caught us all off guard! 
The next day he was better though, and eventually just waited for Ayden to look his way, and would return that look with a great big grin. 
What do you think? Do they a look a little alike?
 Ben also discovered, while Ayden was here, that he can move all over the house without having to be on his hand and knees. 
He learned that the bathroom stool makes a great walking aid, and pushed it (literally) all around the house. 
I actually caught him the first time he took it from the bathroom, so he still had his "Oh look what I can do!" expression on. 
 Matt downloaded Ayden the old Pokemon series. I guess it's still a thing now, but different, so when he realized that Matt was getting him the entire original collection, it was like Christmas again! 
They watched a few episodes while he was here, and the girls realized that they are definitely not Pokemon fans. 
They are Ayden fans, most definitely though, and we were all so glad to have him again! 
Thanks for making our week, Ayden, and we're all looking forward to your next visit!

Saturday, January 4, 2014


My mom. 
She's such a crazy woman.
She worked on the kids blankets for months, (she made nine of them!) saying left and right that they were just "silly" and she's expecting them to be abused and thrown out when they're tattered and torn, making sure we don't take any extra action to take care of them.
Ha! Ha!
Every single child was completely thrilled with their very own personalized blanket. 
My girls use them every night when we're settling in before bed, and they definitely take care of them. 
She made Gracie a mermaid one.
 Hanna got a "dancing bears" one. The "dancing bears" is a musical Christmas decoration at my mom and dad's that turns on to play music, and the magnetic bears dance around while it all lights up. Pretty awesome if your name is Hanna. 
She waits all year long to take out the dancing bears, and then it's a really big deal when they go back to "sleep", My mom waits for her and lets her help put them away, so she's not traumatized when she goes over and they're not there.
Now, she can have them all year long.
*Note* The girl bear does have another ribbon on her other shoe. We have to attach it again. What can I say - the girl loves her blanket!
 Hailey got a pony one. 
She knew immediately which ponies Nanny included too.
"Buttertie" (Fluttershy)
"Pintie Pie" (Pinky Pie)
"Wowdee" (Rarity)
 They were definitely a hit, and will be kept forever. 
Thanks Mom.